Sunday, February 3, 2008

Melanoma Miracle

All babies are miracles, no doubt. But I sit and look at the pictures of Tye as a newborn, and think of how naive we were about this awful disease. I think back to when I first met Brian, about 3 months after his first duel with the beast...I realize so many melanoma warriors have no time. I look at Tye and know that he is a melanoma miracle, as the beast rarely shows any mercy. Tye was born in a time period we now know as NED, no evidence of disease, and we are blessed tenfold that Brian's melanoma disappeared long enough for us to fall in love, become a family with the girls, and then have Tye.

Daddy and Tye - first picture together


This is one of my favorite pictures of Daddy and Tye. The expression on Brian's face says it all about how he feels about Tye, from the first moment!

Sweet Baby Tye




Farmer Tye!

We have had so much fun with Tye and his birthday. This year he was actually old enough to be able to count down. Rachel called him in the morning on the way home from the basketball game and told him Happy Birthday, and Tye told her...Happy Birthday to you too! I asked him what he wanted, and he said...tractors. (Big surprise) I said...you don't need another tractor, you got a whole bunch of them for Christmas. He giggled and said...I know mom, but I want one! He was quite excited to get his own pedal tractor! We've let him drive it around the island all weekend, and the only problem has been the black marks on one set of cabinets and the front of the fridge when he cut the corners too close...and also maybe a few toes and a few cousins who got dumped out of the trailer!

As for Brian...no headaches, pain is under control. Seizure activity this weekend, and it is odd because there is intermittent jerking of the right arm every 10-20 seconds, then it goes away, then comes back. There have also been other longer seizures, lasting 60-90 seconds, and mostly involving only his right arm and hand and neck. This has sometimes left his right arm and hand paralyzed for several minutes afterwards. I have been in contact with Dr. Anderson tonight, as we have been talking over the last several days about Brian's dilantin level. He suspects it is maybe too high, but also thinks this is being caused by increased swelling in the brain. We have increased another med to help with this, and will do some blood work this week for the other.

I will take Brian to St. Joe in the morning for an 11:30 a.m. surgery for the port. Thank you in advance for your prayers because it will be a deal. I am especially hoping the pain stays under control and the seizures stop, of course.

Update tomorrow...

Jenni

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