Today was much like yesterday, and yesterday was decent, so all in all, it was another good day. Brian had a CT this morning that we have yet to hear the results of, so I will do some digging on that in an hour or so if we haven't heard. His leg is draining still, and even leaked all over the bed. The surgeon this morning just said...out is better than in...so I guess they don't mind it doing that. The did not control his pain overnight the way I had hoped for, but it wasn't terrible, and we were able to get some adjustments right away. The oncall doc tried to give him percocet for the breakthrough pain...ha...it is like candy to Brian, so of course didn't budge the pain. Tonight is getting back on track, and this will be an ongoing challenge to keep him comfy.
Physical therapy came today and we tried to stand him up at a walker. That didn't work. He was so weak he could barely put any weight on his legs and ankles. That will come. The therapist suggested inpatient therapy at a rehab hospital (like Rusk here in Columbia), and the tears just welled up in Brian's eyes. He told her...I miss my kids. I said...you know what, we're not doing that, we're going home, so let's get another plan. They were great to work with us, and we're looking to bring a lift home to get him up out of bed and around if needed. He is going to have to work hard to improve his mobility, at least to the point of being able to function around the house. Brian's ill condition just doesn't justify spending precious time here, and we think getting home to the kids will help him the most.
The bed and other equipment arrived today, as well as the antibiotic. Hopefully, we can start the move home tomorrow, Saturday at the latest. Brian will not take the ipilumimab treatment now, but will on Tuesday if he is up to traveling back to Columbia. If not, then we will skip this 3rd treatment and wait 3 weeks to let him get better and take the next dose on schedule. That isn't what we want to do, so we could really use some extra prayers to keep Brian on schedule with this chemo, considering it was our last chance at getting infront of the beast.
I was able to get in a shower at TJ's mom and dad's, both yesterday and today. They live just outside of town, and it was only about a 5-7 min. drive from the hospital. They made me feel at home, and it was a refreshing break.
It has been a long week, yet it feels good to know Brian has improved over the days here. Hope you all have a fantastic Friday.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment