I've come to realize that this blog is reaching much farther than I had ever imagined. I don't know why. This blog is doing so much for my sanity, for my chance to share my feelings, for my chance to vent. I don't know what your reason is for sharing our journey; but we feel blessed to have you with us.
I would love to know where you are from, so please post if you wish to share. You can do this anonymously. Please also send notes through this blog, as we do read them and draw strength from so much support.
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2 comments:
Hi Jenni & Brian,
I currently live in Long Island, New York but am originally from Massachusetts. Just wanted to let you know that you and your family are in my prayers. I admire your strength - your faith and your persistance in fighting this battle.
I have been reading your posts from Ohio. I am Linda (mom to John) on the MPIP site. John is 26 with mets throughout his body, one large one in the heart and recent brain mets. (2 surgeries) He had a brain bleed this summer after the gamma knife and was paralyzed on his left side for several weeks. He had no primary when he was diagnosed in 2002 with a swollen neck gland. He did the year of interferon and was clear for 2 years. MM reappeared last April in the abdomen and back. He did Il-2 six times last summer getting as many as 20 bags once. When that didn't work he tried a CTLA trial. The abdominal tumor required emergency surgery this spring...then the brain tumors. He is now trying a chemo cocktail of DTIC, cisplatin and vinblastin. He gets results today to see if there is any new growth in the brain. Believe me I know your level of anxiety. John has a new wife and 1 year old. Life isn't suppose to be this hard. You and Brian, Tammy and Bryce, Liz and Mike are all in my daily prayers for miracles and strength to bear each day.
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